Roslyn

Roslyn’s Story

Once upon a time, there was a miracle princess born into an amazing family in the blossoming town of Sparta, Michigan. The princess, named Roslyn, has a rare disease that still does not have a name, but it is under the umbrella of arthrogryposis. What is arthrogryposis? Johns Hopkins explains it like this:

Arthrogryposis, also called arthrogryposis multiplex congenita (AMC), is a term used to describe a variety of conditions involving multiple joint contractures (or stiffness). A contracture is a condition where the range of motion of a joint is limited. It may be unable to fully or partially extend or bend.

This means Roslyn is unable to fully open her joints and has extremely poor muscle tone. Roslyn's range of motion and muscle tone are increasing, but overall, she is extremely delayed in gross motor skills and must rely on a feeding tube, trach, and at night, a ventilator.

Roslyn, often dresses in princess gowns topped with a big bright bow, and uses her wand to sprinkle joy and beauty wherever she goes.